First Give students support local boy with rare health condition

Aflie and two judges with the First Give winning team at the School Final: Olivia, Angharad, Catrin and lleucu

"Alfie Jones is no ordinary 6 year old" 

He is blind, deaf and is known as "the boy who baffles doctors". The youngest of 5 siblings, Alfie was born with a rare genetic condition known as ‘unbalanced chromosome translocation’. In fact, it is so rare, he is the only person on the planet that has this condition.   

A group of students at Llangynwyd School in Bridgend, South Wales, decided to support Alfie as part of the First Give programme. The money would be given through the charity Tree of Hope, who support children's healthcare needs. 

“I am extremely proud of the girls"  

Marie, Alfie's mum, outlines that "The students called me and said that they wanted to try to win money for Alfie through the First Give programme that they were doing at school. All the girls came to visit and played with Alfie in his bedroom and came to interview us".  Marie explains that they spent time getting to know Alfie. They asked us about Alfie’s condition, and what the future holds for Alfie and what his likes (milk and ice cream!) and dislikes were." 

"It’s a strange sensation to be proud of girls that I don’t really know 

He had only been out of hospital for 4 days before attending the School Final. "He bounces back quick!" says Marie. As the girls began their presentation they projected a big picture of a smiley Alfie to the room. Instantly, hearts melted.  

The girls made a passionate and emotional plea for Alfie – they told his story with conviction and had clearly carried out their research. “The girls made a video but I didn’t want to see it until the night of the School Final” admits Marie. As the film played on the night, at the back of the room, Marie was "fighting back the tears, as were the judges and the rest of the audience". 

They ended and received a standing ovation. 

Judges went to deliberate and left the audience in the hall. Suspense was building as the two £250 winners were announced and then a huge cheer engulfed the hall as it was announced that Alfie’s team had won him the £1,000!  

“£1,000 will make a massive difference to him 

The £1,000 prize will go towards purchasing Alfie a posture-correcting and comfortable chair. 

We’re extremely grateful to the girls, the school, to First Give. First Give obviously makes a difference – it teaches children to be more caring, considerate and to think about others 

First Give is continuing to expand in Wales next year and will be able to work with up to 50 schools. If you are interested in getting involved, email leon@firstgive.co.uk.